World AIDS Day commemorated each year, is an opportunity for people worldwide to unite in the fight against HIV, to show support for people living with HIV, and to commemorate those who have died from an AIDS-related illness .Founded in 1988, World AIDS Day was the first ever global health day, and organizations and individuals annually endeavor to increase HIV and AIDS awareness and knowledge, speak out against AIDS stigma, and call for an increased response to move toward ending the AIDS Epidemic.

This year’s theme “Equalize” slogan is a call to action. It is a prompt for all of us to work for the proven practical actions needed to address inequalities and help end AIDS.

The Adolescent, Girls and Young Women (AGYW) in Africa remain disproportionately affected by HIV, while coverage of dedicated programmes for them remains too low. AfNHi is committed to giving the young people a platform for their voices to be heard and on this World AIDS Day, the

youth cohort commemorated it in line with the global celebration with a live Twitter space themed, “The role of the young people and the journey to HIV prevention”.

Itumeleng Mothlabane based in South Africa kick started the conversation by sharing how young prevention champions in her community, took leadership before, during and after COVID – 19 by going to the clinics and finding a variety of ways to involve young people on discussions and programs targeting prevention and de-stigmatization community strategies.

HIV-related stigma has been increasingly recognized as a key factor impeding HIV identification, prevention, and treatment. Stigma and discrimination impact the way communities, family, and partners interact with young people living with HIV, and undermine public health efforts to combat the epidemic. This is largely due to the negative impact stigma has on primary and secondary preventive behaviors such as condom use, HIV testing, engagement in HIV care, and quality of care.

Winnie Akidi, an AfNHi youth cohort member based in Uganda, stated that the young people in Uganda are engaged now more than ever through social media, and other platforms such as through beauty peagents for example Y plus which have allowed for a united front on young people voices in creating awareness on HIV prevention.

Evidence shows that where young people are involved in programming, visible effective programme outcomes and services work towards HIV prevention and new HIV infection among young people. As the saying goes, nothing for Us Without Us, it is therefore vital that young people are engaged continuously to support the HIV response, treatment and prevention.

Saidy Brown, an AfNHi youth cohort member based in South Africa, stated that four decades into the HIV response, inequalities still persist for the most basic services like testing, treatment, and condoms, and even more recently so, for new prevention bio technologies. She did however state that “The future looks bright, given the different options available for HIV prevention. What we deserve is a life free of worry from HIV and provision of a basket of choice will go a long way in meeting community, AGYW needs at the grass root level.

Providing African communities with a variety of acceptable, discreet, and convenient choices for highly effective HIV prevention is imperative NOW, not in the near future. For some people, provision of a buffet of prevention options will allow them to increase the options suitable to them at different points of their lives. As such the need for new women centred HIV prevention options remins a public health , reproductive justice , and human rights imperative.

An estimated 50 adolescent girls die every day from AIDS-related illnesses. And each day, some 460 adolescent girls become infected with HIV. Accountability is critical and we are far behind reaching the Fast-Track Targets for 2020 agreed by all countries in the 2016 United Nations Political Declaration on Ending AIDS. Services for adolescent girls and young women are especially failing to reach those who are falling the furthest behind—adolescent girls and young women who experience gender-based violence, who are sexually exploited or who use drugs, among others.

Victoria Quaynor, based in Ghana concluded the discussion by highliting that we can not ignore that any form of inequalities has a greater probability to contribute to a slow response to the HIV prevention programs currently available accross Africa. Inequalities on HIV prevention options, inequalities on stigma and discrimination, gender inequalities just to mentinon a few.

Gender inequalities particularly, adolescent girls and young women face discrimination that compounds their vulnerabilities to HIV. They are largely invisible, underserved and underrepresented in policies, services and investments.

When girls can’t uphold their human rights—especially their sexual and reproductive health and rights—efforts to get to zero exclusion, zero discrimination, zero violence and zero stigma are undermined. It is time to break the vicious cycle of gender inequities, gender-based violence and HIV infection, once and for all.

HIV is life changing and not limiting- we are greater than HIV.- inc AfNHi youth cohort mentorship 2022

In October, Munashe Mhaka, a Zimbabwean AfNHi youth mentorship cohort member reached out to young people at the University of Zimbabwe and created a WhatsApp group link for them to join. The theme of discussion was “HIV and ME,” and the first discussion was on HIV and AIDS. This aimed to increase young people’s knowledge on the basic facts about HIV and AIDS and to distinguish between the facts and myths of HIV and AIDS, as well as to get rid of any myths that they might have heard about HIV.

The session also aimed to help participants understand the process of HIV testing, to weigh the pros and cons of having an HIV test, and knowing where to get HIV testing services. They discussed HIV Testing and Counselling (HTC); What it is, how it reduces HIV risk, and its benefits. The discussion went on to further focus on the barriers and facilitators to HIV Testing, so as to help participants understand the reasons why adolescent girls and young women go or do not go for HIV testing. This expanded into issues of disclosure and stigma. They looked at issues involved in supporting People Living With HIV (PLHIV) to disclose their status, and the difficulties involved with disclosing someone’s HIV status and how-to better support PLHIV. Participants were left with an understanding of why disclosing one’s HIV status is important and to know the effects of stigma and how they can be overcome. The session was a guide to participants to know the truth about living with HIV and supporting those who are living with HIV.

AfNHi youth cohort mentorship team members came together to share the status of disability inclusion In the countries they hail from especially In terms of sexual reproductive health and rights information access. Global research suggests that persons with disabilities face barriers when accessing health care services. Yet, information regarding the nature of these barriers, especially in low-income and middle-income countries is sparse.

Much as there’s no accurate data on disability numbers and figures, it is important to note that sexual reproductive health rights and services is an important context on information and informed choice making that every young person regardless of their disability should have. In as much as today and now we may not have any visible form of disability, it is important to note that each and every one of us is a second away from getting disability as much as we are only focusing on advocacy in general, there’s need to work around Sexual Reproductive Health rights (SRHR)  and HIV infection figures across all youth categories.

In the discussion it was mentioned how in rural South Africa such as Madwaleni , persons with disabilities faced significantly more barriers to accessing health care compared to persons without disabilities. Barriers increased with disability severity and was reduced with increasing level of education, living in a household without disabled members and with age.In the urban cities such as Johannesburg , Gcobisa Madololo informed the team that there are few youths’ friendly facilities that specifically deal with people with disabilities however most facilities are inaccessible for persons with disabilities as they do not have ramps, as well as ill treatments from health providers. This is a major issue that is neglected by advocates and organizations working around SRHR service access and information.

Dr Patrick Sseremba from Uganda mentioned how while undergoing his medical training, he never came across an instance where he interacted with  a person with disability during service provision, not until his private practice. In his current work practice he mentions how challenging it is to offer services to these category as for instance when those below the age of consent come for a service, their parents/guardians and caretakers often fail to relay accurate challenges that these young clients face making it hard to diagnose.In most scenarios of clients with speech and hearing disabilities, he mentions how often the caretakers speak different languages as some fail to communicate in sign language with these persons with disability.

Given the context of medical curriculum of medical students, often these health workers in the end do have the opportunity to study sign language in their curriculum making it hard for them to communicate with their patients with speech and hearing disability when they come for service.

Victoria Quaynor from Ghana submitted with regards to the cost of communication  and how it is considered expensive to communicate with persons with speech and hearing disabilities as it is important to break down the messages to consumable information for these persons as well as have sign language interpreters to relay and bridge the communication gap.

The United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) is a human rights instrument on an international level intended to protect persons with disabilities’ dignity and rights. Eight guiding principles underlie the Convention, of which accessibility is one . Health care needs that are not met and that exacerbate health disparities are experienced disproportionately by persons with disabilities.

This cohort believes that it is important to integrate disability inclusion and sign language interpretation in sexual reproductive health care and rights advocacy especially in our community outreaches and implementation programs if we really are to contribute towards universal access to health care and leave no one behind.

Compiled by ;

Winnie Akidi (Uganda) AfNHi Youth Cohort Mentorship Member

In October, Munashe Mhaka, a Zimbabwean AfNHi youth mentorship cohort member reached out to young people at the University of Zimbabwe and created a WhatsApp group link for them to join. The theme of discussion was “HIV and ME,” and the first discussion was on HIV and AIDS. This aimed to increase young people’s knowledge on the basic facts about HIV and AIDS and to distinguish between the facts and myths of HIV and AIDS, as well as to get rid of any myths that they might have heard about HIV.

The session also aimed to help participants understand the process of HIV testing, to weigh the pros and cons of having an HIV test, and knowing where to get HIV testing services. They discussed HIV Testing and Counselling (HTC); What it is, how it reduces HIV risk, and its benefits. The discussion went on to further focus on the barriers and facilitators to HIV Testing, so as to help participants understand the reasons why adolescent girls and young women go or do not go for HIV testing. This expanded into issues of disclosure and stigma. They looked at issues involved in supporting People Living With HIV (PLHIV) to disclose their status, and the difficulties involved with disclosing someone’s HIV status and how-to better support PLHIV. Participants were left with an understanding of why disclosing one’s HIV status is important and to know the effects of stigma and how they can be overcome. The session was a guide to participants to know the truth about living with HIV and supporting those who are living with HIV.

The expectation was that at the end of the program, the young people would:

1. Be open in discussing HIV and AIDS issues
2. Be able to reflect on their risk to HIV contraction
3. Feel encouraged to go for HIV Testing
4. Encourage others to go for HIV testing
5. Speak out against stigma and discrimination towards people living with HIV
6. Have a deeper understanding of what it means to be living with HIV

The group members managed to link up at the University Sports grounds, and had a physical session discussing SRHR issues.

On the 26th,/September/2022, Winnie Akidi an AfNHi youth mentorship cohort member based in Uganda, hosted a twitter space that brought together four speakers i.e. The president of African Youth and Adolescents Health Network on population and development, the Executive Director of Nile girl’s forum, the BCC Programs manager at Naguru Teenage health and information center as well as a disability rights advocate and communications officer at National Union for Women with Disabilities of Uganda to a holistic round conversation reflecting on the barriers young people face in accessing SRHR services and information.

In this online conversation ,it was revealed that recent studies in Uganda and across the sub-Saharan Africa show how young pep[le are having limited access to contraception services and  how lack of trained personel to address the sexual reproductive health needs of young people and persons with disability at large in health facilities is a big challenge. In her statements she  also mentioned how persons with disabilities face magnitudes of challenges in accessing these services due to stigma and negative attitudes by service providers and medical workers who assume people living with disabilities should be asexual which deficits in perception and knowledge have greatly affected persons with disability and young people’s access to sexual reproductive health care services today.

Having invited key advocates to respond to a question dubbed “REFLECTIVE VOICES ON SRHR ACCESS”, one of the panelists, Charles mentioned how policies have greatly influenced access to SRHR services for young people especially those below 18 years in Uganda. Reflecting on different works done by different members of Civil Society .He further stated how unfriendly policy environments that inform advocates are not available for example the Adolescents Health policy which would be a key guideline for actors to advocate for Sexual Reproductive Health Rights and services isn’t available. He mentioned how these are key documents that would help guide advocates works.as well as guide the health system structures  that do not favor service delivery  in terms of functionality ie, they do not have the capacity to offer these services as most of them do not have key contraception services and the community health workers model would play an important role in relaying guidance of SRHR service access in communities.

Charles also mentioned how gender inequality and patriarchy in society today does not give the girl child an opportunity to negotiate and decide or speak for themselves, thus the growing teenage pregnancy and child marriages associated with social norms and culture that fuel patriarchy. At institutional levels most of the girls and boys do not have the information around SRHR to help them make informed choices.

As a passionate gender and disability expert, Shamim mentioned how the barriers are compounded especially with the covid pandemic, caretakers of persons with disability in reproductive age  still deny them their  SRHR rights without consent where body autonomy is involved. she further mentioned how care takers carry out drastic decisions like abortion and forced sterilization of these person in thought that they incapable of taking care of children since they are disabled. Shamim also mentioned how the physical environments are not friendly and how medical equipment are not designed for examination and labor purposes thus robbing these young women of their dignity.

She mentioned an example of how a person with albinism is discriminated against and asked inappropriate questions like “Are you also white down there”. This has often made them shy away from going to access services as well as negative language from nurses to women with disability on how they were able to climb their marital bed and fail to climb the hospital beds during antenatal checkups.

Thembo, a BCC programs advocate, shared how we can quickly appreciate the translation of knowledge into information for young people and vice versa around behavior change for SRHR information uptake. He mentioned how access to information should ultimately influence behavior of young people stating how we are supposed to translate all information on SRHR into consumable knowledge for the young people to understand and appreciate the information they get. Thembo also mentioned the need to conduct routine surveys on understanding the needs and preferences of young people’s need to consume this information.

Peace from Nile girl’s forum shared how they are using a peer pals model to disseminate age appropriate information on treatment and adherence in refugee settlements in the West Nile region. She also mentioned how they are working with cultural leaders of “Alur kingdom” to champion SRHR issues and support young people, as culture is a pivotal instrument in communities given that communities believe so much in their leaders.

Recommendations;

During this call, to address the disability segregation, it was mentioned the need for continued awareness of communities, medical workers and different institutions on disability and disability rights on how to offer services for young people with disabilities.

There’s a need to be intentional on how to package messaging around SRHR and HIV prevention and awareness. Mentioning how the media needs to be fully engaged in creating awareness.

There is a need for male involvement in promoting SRHR services especially contraception usage and access as it is stereotyped and considered a women’s thing making uptake a challenge.

From the comment section, someone mentioned the need to mend structures that need to be lobbied for and advocated such that an inclusive environment is created in health centers, in this every health center needs to have an adolescent clinic.

In conclusion, from this discussion, different challenges ranging from structural, institutional and perception challenges are key barriers to access of sexual reproductive4 health rights and service information uptake among young people today. And thus the need for tailored implementation programs that best meet the needs and preference of young people in accessing SRHR information  and service as we strengthen our advocacy today.

Compiled by 

Winie Akidi- (Uganda ) AfNHi Youth Cohort member

Heard of the phrase “human-centred design”? Human Centred Design, also known in short as HCD, is an approach to problem solving that focuses on understanding the needs, motivations, and aspirations of people to inform the design of potential solutions.  With empathy as its organising principle, HCD uses a creative and participatory process to generate ideas, develop them into prototypes for testing, and iterate on the result until a solution that best serves the needs of the target users is achieve(Rimjim, HCD Consultant at HCD Exchange). 

Prior to joining  HCD Exchange in 2022 I had some level of understanding of HCD. Notably, in 2020, I participated as an interpreter on a Y-Labs project that engaged girls on SRH, specifically  youth friendly clinics.  Although there are many  HCD methods and tools such as Journey Maps, Role play,Storyboard, card sort just to mention a few. One of the tools used by Y-Labs during the session was Card sort through a focused group discussion.

I was previously unaware that card sorting  was one of the HCD tools, but I thought it was a unique method to involve the youth,especially because it enables the facilitators to include images associated with the particular topics covered during the session. Interesting, I said to myself.

 I didn’t have the opportunity to inquire further about their decision to employ that strategy because I was so ecstatic to have witnessed something novel—that was the twist—that I missed the opportunity.

After a rigorous selection procedure, I was given the uncommon opportunity to join HCD Exchange in 2022. I’ll elaborate on that later, but for now, let’s focus on how it affected my life.

When I joined HCD Exchange, I gained a lot of knowledge about how Human Centered Design can be applied to adolescent sexual and reproductive rights.That was when I understood the different HCD  tools better including the one used by Y-Labs.

You’ll notice that HCD makes it easier and more possible to understand the needs of persons we design  programmes for as development workers and  advocates.

As a young advocate with Africa free of New HIV infections( AfNHi), I had the opportunity to give a presentation where I introduced HCD to other advocates working on SRH. I briefly discussed the definition, tools, and ways they can integrate it in their work.

As a result, my project, SRH Day out, targeted the Shai Osuduko community. Using HCD, we assessed their needs and determined that they required not only reproductive health information but also education support in the form of stationeries. Using the  AfNHi youth mentorship project support, my team and I provided a comprehensive  response to their needs during the project’s implementation;through SRHR  information sharing, provision of stationeries for students, career guidance and mentorship. This way, the people of Shai Osuduko, chiefly, the young people’s needs would be met.

With the use of HCD,advocates are well versed about the various tools available to identify the needs of their target, build solutions that are targeted, and share best practices when necessary. The next time you think of designing any program or solution for SRH, think of HCD to help you in the process.

This is my HCD usage experience; to learn more about HCD, see the HCD Exchange community or the AfNHi social media pages.

Victoria Quaynor- Ghana (AfNHi youth mentorship cohort member )